When you’re caring for a medically complex child, you need help—but it’s overwhelming and exhausting to field the constant “Let me know how I can help,” “Just call me if you need anything,” or “What can I do for you?” messages. The decision fatigue for parents in crisis is grueling. We desperately need the help, but our supporters need a clear path that empowers them to actually be helpful.
That’s why Ashlyn sat down with Jordan Arogeti, co-founder of Support Now, to share a free support registry every family needs to know about. Most of us are already juggling donation platforms, blogs, group texts, social media pages for updates, and meal train sign-ups… but what if all your needs—meals, childcare, fundraising, prayer requests, volunteer help, and more—could live in one customizable, evolving registry? Hallelujah.
Support Now is built to be supporter-led, giving your friends and family a clear path to help. They can see exactly what you need, choose how they want to contribute, and adapt as your family’s needs change—all without adding to your plate. Unlike tools that fizzle out after a few weeks, the registry is designed for sustainable, long-term supportduring the toughest seasons.
This conversation is personal. Ashlyn was introduced to Jordan by PEN Board Member Abby Zachritz (aka Advocacy Abby), Support Now’s Director of Family Advocacy. Together, they’re making it easier to rally your “village” in real life, not just on social media.
If you’ve ever felt the weight of being asked “What can I do?” when you’re too exhausted to answer, this episode is for you. Hear why Parent Empowerment Network wants every family to know about this life-changing resource—and how Support Now is transforming the way communities show up for each other.
Resources from this episode:
Jordan’s TEDx Talk: https://www.supportnow.org/
Support Languages Quiz: https://www.supportlanguages.com/
Advocacy Abby: https://www.advocacyabby.com
Connect – Database for Medical Expense Grants: https://grants.supportnow.org/
We kindly ask that you share this podcast with other families who might benefit from our insights and support. Additionally, please take a brief moment to leave a review on your preferred podcast platform, which helps us to reach as many families as possible who are navigating this challenging journey, so they can find our support circle and access the assistance they rightfully deserve. No one should walk this journey alone.
To get more personal support, connect with us directly at:
https://parentempowermentnetwork.org
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Join the Parent Empowerment Network Community of Hope
Get your copy of She is Charlotte: A Mother’s Physical, Emotional, and Spiritual Journey with Her Child with Medical Complexities by Emily K Whiting on Amazon
