12. Advocating for your child: Emily’s breakthrough

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After five years of struggling with chronic and acute pain with her daughter, Emily shares her breakthrough moment that happened this week, finally discovering the answers their family has sought for addressing Charlotte’s pain. Through trial and error, and many frustrations and setbacks, Emily is learning first-hand what it means to be your child’s advocate, and is sharing her insights. Tune in to this episode to celebrate the victories of advocacy and gain tools to navigate the world of pediatric medical complexities.

In this episode you’ll learn more of the backstory of Charlotte’s medical challenges, Emily’s challenges and heartaches as she tries to care for her daughter while often feeling helpless to alleviate her daughters’ pain, and the amazing progress that’s been made toward healing in the last few months. As you listen, you will:

  • Learn what questions to ask to find the right specialist, sub-specialist, clinic or team who can best help your child.
  • Gain the confidence to keep seeking answers, keep questioning, keep pushing until your child gets the care they need.
  • Learn how humility and confidence together play a key role in your approach as an advocate.
  • See how our innate desire to seek the approval and validation of medical professionals can also be limiting, and learn how we can reorient our need for validation in a constructive manner.
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