“To the ends of the earth,” says Emery’s warrior mama, Ashlyn Thompson. Thankfully she doesn’t have to go that far, but she is preparing to cross the pond to seek her daughter’s treatment in London, United Kingdom. Ashlyn opens up to us about this looming trip and her daughter’s procedure which is not yet offered in the United States. In this episode she shares about the challenges and hurdles she’s navigated as she ultimately found and chose this surgical option. She also shines a light on the lack of insurance coverage for out-of-country procedures that are non-emergent.

79. The Language of Support with Amy Bradford: How to Support Parent Caregivers in Meaningful Ways that Make a Difference
The journey of caring for a child with rare disease or complex medical needs often leaves parents and caregivers isolated